Support possibilities

Self-help groups

Here, you can openly exchange information about your situation with other patients or simply talk to people who are experiencing similar things as you. The emotional cohesion that comes from such groups can be invaluable.

Emergency numbers

Make sure that all relevant people have access to emergency numbers and know what to do in case of an emergency. This creates security for all involved if something should happen.

Learning together

Offer to be involved in the learning process about dialysis as much as you can. The more you know, the better you can support and understand their situation.

Appointments

It can be helpful to accompany the patient to important medical consultations, especially if your relative’s / friend’s mental capacity is impaired. In particular, the decision for a suitable form of therapy should ideally be supported by the patient’s family and friends.

Medication plan

Make sure that your relative / friend adheres to their medication plan that was set up by the attending physician. Medication therapy is designed to relieve symptoms of kidney disease and to preserve any residual kidney function for as long as possible. Failure to follow the medication regimen can lead to serious complications.

Diet

Encourage your relative / friend to follow dietary guidelines given by the healthcare team, as this can have a significant impact on the success of the treatment. You may enjoy trying out new recipes together.

Hygiene

Especially when choosing a home therapy method, it is very important to carry out the treatment steps in a sterile way and to observe hygiene measures. For your loved one it is important to take care of the catheter exit site or the shunt to avoid infections and complications.

You can find support from many people: From your loved one’s healthcare team, to your own family and circle of friends, to professional carers and organizations that specialize in working with people who have kidney disease.

Nursing services may be able to assist with your relative’s / friend’s care in different ways. From paramedic services to complete dialysis treatment in the home environment (assisted peritoneal dialysis), a wide range of support options may be found in your area to support you.
Social workers can help in many areas, especially when it comes to benefits, financial support, and existing entitlements.

Seeking therapeutic help does not mean failure, nor is it a reason to be ashamed. Confronting a chronic disease poses challenges to the soul that may require a professional approach to overcome them.

Always be aware: neither you nor your loved one need to walk this path alone!